The RUNX1 Research Program (runx1.com) is the only nonprofit organization committed to finding a cure for RUNX1 FPD/AML, a hereditary blood disorder that predisposes to leukemia. Its primary purpose is to fund cutting-edge leukemia research, and in the last 12 months it has funded nine grants totaling approximately $3.5mm. As well as bringing attention and visibility to the disorder and the RUNX1 mutation, the organization aims to support patients by providing a forum in which to help educate and connect them with others. Although considered an orphan disease, RUNX1 FPD/AML research findings are useful to the larger leukemia field as well as to the expanding realm of inherited cancers. The RUNX1 Research Program was founded in 2016 by The Babich Family Foundation in Santa Barbara and will be headquartered in Palo Alto.
The RUNX1 Research Program is hiring an Executive Director to work with the two chairman-founders and scientific director in order to manage and grow the organization. The chairmen are looking for an experienced non-profit professional who comes with expertise in organization-building and cultivating relationships. This hands-on executive will be responsible for all day-to day operations of The RUNX1 Research Program, including raising the public profile of the organization, sourcing and securing long and short-term funding opportunities, and refining and strengthening our existing grant programs. Working with the two chairmen, the Executive Director will continue to review the strategic direction of the organization, moving the organization toward a new level of impact. The Executive Director will coordinate and help run our two annual conferences, bringing together our grant awardees and other prominent and relevant scientific and medical researchers in the field. The candidate will work with the chairmen and our IT consultants to write newsletters and patient communication, to update and manage social media, to maintain our on-line patient registry and to keep our website current with relevant content that is well-presented and well-written. A successful candidate will be self-motivated, resourceful and articulate, skilled at interacting with key contributors such as scientists, academics and non-profit professionals, effective at presenting to potential donors, able to work and collaborate well with the chairmen, and flexible in working through the challenges of a growing organization.
Management & Administrative
Oversee and manage all aspects of day-to-day operations, including telephone calls, emails, oversight of office administration (auditors), finance (wire transfers), legal counsel, human resources, website and patient resources, and social media. A highly qualified and dedicated Executive Assistant is being hired to support these efforts.
Work with the two chairmen to develop and implement a plan to diversify the organization’s revenue stream beyond The Babich Family Foundation’s existing funds. This will include using social media, approaching foundations and applying for relevant grants, developing tools for affected patients to raise funds, and harnessing the power of non-traditional/new fundraising initiatives. Candidate will source grant opportunities, write applications, and manage relationships.
Manage and direct RUNX1’s marketing and public relations efforts through social media and other vehicles to increase awareness and advocacy, ensuring we have a consistent, powerful and clear message aligned with our mission and vision.
Work closely with the chairmen, scientific director, and scientific advisory board to consider the organization’s strategic direction. Identify, manage, and cultivate strategic partnerships.
Manage the planning and oversight of our annual scientific research conference (fall) and patient conference (spring).
Manage and maintain all current and future infrastructure resources, such as a registry and tissue bank, cell line bank, and genetic data repository.
Play a visible role in the rare genetic disorder and cancer worlds to raise our organization’s awareness, ensuring that our message and successes are effectively communicated through conferences and social media.
Maintain and grow a strong, useful website as a resource to patients and families, implementing strategies to become a comprehensive source for information on the disorder, treatment options, the current state of research, and anything else that may be relevant and support the community.
Develop a patient advisory board and coordinate the advisory board’s activities, which may include local, “smaller-scale” events, fundraisers or educational events. Field calls from patients who may wish to reach out to the organization to learn more about the disease and how the organization can assist them.
Work with the chairmen to help write and distribute quarterly newsletters and mailing list correspondence, and with the Patient Advisory Board to create patient resources such as a ‘handbook’ for living with
Create a fundraising strategy to expand upon revenue streams. Research advances in innovative fundraising and revenue generation for non-profits to inform future programming. Identify relevant foundations, grant programs, potential donors and implement suitable fundraising initiatives.
The Executive Director will be committed to The RUNX1 Research Program’s mission and aims. Supported by our Scientific Director, a world-leader in this field, and our Scientific Advisory Board, this position does not require any specific scientific or medical experience, although such a background, and particularly comfort in reading scientific research abstracts would be considered a major plus. The successful candidate will have proven leadership, relationship management, time-management, communications, and organizational skills, ideally in the non-profit sector.
Additional experience or qualities include:
Bachelor’s degree from a highly ranked university required; graduate degree in science or applicable fields a plus
Proven track record in non-profit management
Proven track record in developing and implementing marketing plans and fundraising
Proven track record in building and successfully managing teams
Experience in an entrepreneurial environment and organization-building
Detail-oriented with exceptional written and oral communication skills, including the ability to make effective presentation decks
Ability to work effectively in collaboration with diverse groups of people
Experience with or knowledge of the medical, scientific research, health or pharmaceutical world is highly beneficial, though not necessary.
Strong computer and research skills, including the ability to make clear and effective spreadsheets
Financial management experience (budget development and management)
Experience in securing foundation and/or government grants to support program work
Passionate, energetic, practical, common-sense-oriented, focused, and creative
Strong leadership skills with a style that encourages growth, creativity, a can-do attitude, accountability, collaboration, and problem-solving.
A primary residence near Palo Alto, CA - or relocation to the area - is a requirement for the Executive Director. No telecommuting for this position.
FOR MORE INFORMATION OR TO APPLY, PLEASE CONTACT:
An introductory/cover letter explaining how you would be the ideal candidate along with a CV/resume should be included.
Additional Salary Information: COMPENSATION:
Salary will be commensurate with that of similar organizations as well as ability and experience of candidate.
The RUNX1 Research Program (runx1.com) is the only nonprofit organization committed to finding a cure for RUNX1 FPD/AML, a hereditary blood disorder that predisposes to leukemia. Its primary purpose is to fund cutting-edge leukemia research, and in the last 12 months it has funded nine grants totaling approximately $3.5mm. As well as bringing attention and visibility to the disorder and the RUNX...1 mutation, the organization aims to support patients by providing a forum in which to help educate and connect them with others. Although considered an orphan disease, RUNX1 FPD/AML research findings are useful to the larger leukemia field as well as to the expanding realm of inherited cancers. The RUNX1 Research Program was founded in 2016 by The Babich Family Foundation in Santa Barbara and will be headquartered in Palo Alto.